I am a Myalgic Encephalomyelitis sufferer, I am Italian but I live in Barcelona, Catalunya, Spain.
I have diagnosis and treatment however, as many ME sufferers, before them and also after them, I have been trying to know more about this disease.
There is a lot of misinformation in the web and in the media, that creates much confusion and I will try to dissipate it along this blog.
It’s a huge task, so I ask you to be patient if sometimes I won’t be crystal clear.
I am going to use a scientific approach, in the sense that I will rationally argue every statement I will make.
The process of posting will be the following: I read on a theme and, when some main concepts are clear in my mind, I publish them; then I go on reading other material, I understand more things and often I come back to add some more information in an old post.
I will write in English because I aim to reach an international audience. The times that the illness will allow me, I will translate to Spanish and/or Italian. I won’t use Catalan just to save energy, as all Catalan people can understand Spanish.
For this same reason, if I will talk about an article written in Spanish/Catalan/Italian, I will review it in the same language and maybe I will translate the post afterwards.
And finally, please replay to each post in the same language I used. I won’t allow language chaos.
The arguments will be atomized in little blocks of information, every post an atom block, in a tree structure you will be able to see on the right, in Categories, and when I will have many posts published, you will also see a diagram where all the blocks will be logically interrelated.
I will try to keep this blog easy to read, so I will delete out of threads, offenses and pseudoscience.
I also created a facebook community where to write and share in cheerful disorder:
I have big projects for the future (I will tell you later on), so I hope you enjoy the reading and follow me!
I am not a doctor, I am a sufferer with scientific formation who is studying all the avaiable documents on ME in order to help other sufferers to understand our disease and the situation we are in.